Gosto particularmente do sadismo desta gente...

"In fact, the terminology “rare diseases” only highlights the characteristic of rarity of the complex and heterogeneous mosaic of an estimated 7,000 life-threatening and heavily debilitating conditions. This terminology, which only underlines rarity, immediately puts a reassuring distance between the “poor people to whom something so terrible has happened” and the vast majority of citizens who feel protected by the low prevalence of rare conditions. If these diseases were officially called “terrible diseases that slowly kill your child - or yourself and you are alone”, which is more like the truth, the existence of about 30 million people directly affected would strike public opinion more."

EURODIS (Organização Europeia das Doenças Raras)